NHS Clinical Commissioning Groups in Warwickshire, Coventry and Solihull are part of the national Learning Disability Mortality Review Programme (LeDeR), which is commissioned by the Health Quality Improvement Partnership on behalf of NHS England and is led by Bristol University.
The LeDeR programme was established as a result of one of the key recommendations of the Confidential Inquiry into Premature Deaths of People with a Learning Disability (CIPOLD – 2003).
The programme aims to help health and social care professionals and policy makers to:
• Identify the potentially avoidable contributory factors related to deaths of people with learning disabilities;
• Identify variation and best practice in preventing premature mortality of people with learning disabilities; and
• Develop action plans to make any necessary changes to health and social care service delivery for people with learning disabilities.
The programme will collate and share anonymised information so that common themes, learning points and recommendations can be identified and taken forward into policy and practice improvements.
From 1st October 2017 all deaths of people (aged 4 and above) with a learning disability who were registered with a Warwickshire, Coventry or Solihull GP will be reviewed.
To report a death of a person with a learning disability to the National Mortality Review team you can use this confidential online notification form or telephone: 0300 777 4774 (confidential line available Monday to Friday, 9am to 4.30pm). You do not need anyone else’s permission to report the death. Anyone can report the death of a person with a learning disability, including family members, friends, Local Authority and NHS Staff.
If you are a family member and would like to speak to a member of the LeDeR team please send an email to firstname.lastname@example.org
Please title your email LeDeR and include your contact details. Please do not include any information about the person you would like to talk to us about at this point.
To find out more about the programme click here.
For more information about health checks for people with learning disabilities please click here.
A user-friendly guide to autism for primary care professionals, people affected by autism, clinical commissioning groups, as well as interested members of the general public is available here.