Co-designing dementia services with carers, former carers and members of the public

Dementia is a long-term ongoing condition. While recent national focus has been on improving diagnosis of dementia, the CCG identified that there is more that also needs to be done to improve post-diagnostic support for those with the condition. This will enable people with dementia to ‘live well with dementia’ and remain independent and at home for as long as possible, and enable carers to remain healthy, positive and resilient while carrying out their caring role. Residents, carers and former carers have also told us that they want to be more involved with the development of services.

During our Annual General Meeting in 2018, a number of attendees highlighted the importance of supporting dementia and patients and carers living with the condition. The CCG took the opportunity to host a discussion with them to understand their concerns and listen to their feedback.

This led to the creation of a Carer and Reference Pancel panel which supports co-production and development of ideas to improve post-diagnostic care for carers of those with dementia and for people with dementia. The Panel includes members of the public, including those who first raised it at our AGM, and former carers as well as representatives from the CCG.

Understanding patient needs

The first Panel in August 2018 was a workshop which was attended by a number of providers, including the Alzheimer’s Society, Carers’ Trust Heart of England NHS Coventry and Warwickshire Partnership Trust, NHS South Warwickshire Foundation Trust and Warwickshire County Council.

The Panel met again in December 2018 and will meet again in April and August 2019 to continue developing and co-designing services for carers and for people with dementia.

In October 2018, the CCG also visited a number of community venues to consult with current carers, family members and people with dementia. They fed back their views on how well they thought NHS services had supported them and what they would like to see in the future.

Improving patient outcomes

By consulting and engaging with carers and former carers the CCG ensured that it listened to a group of residents who are not often heard. As dementia is an age-related condition, it also meant that the CCG consulted with older people for services that are predominantly for older people.

Many carers are dedicated to looking after a loved one and do so out of choice, however they acknowledge that caring full-time can also be stressful, tiring and socially isolating. The new developments in post-diagnostic care will support carers and reduce health inequalities so that people with dementia and carers are supported to access services and live full, independent lives for as long as possible.

Following the initial meetings the CCG is working closely with Warwickshire County Council and other providers to put in place the support that residents have asked for.

“The [Panel] meeting was good in the respect of being updated to where the CCG is going with Dementia…My group will continue to attend as it a topic that we feel very passionate about and I am pleased that we have a doctor in our practice that is taking the lead... Keep the good work up.”  

Warwickshire Living Well with Dementia Survey 2019

Warwickshire County Council and The Better Health, Better Care, Better Value Partnership is reviewing our local ‘Living Well with Dementia’ Strategy and the services and support available to people with dementia, their carers and families.

As part of this review we want to hear from a wide range of people about what they feel is important about access to services and support, what is working well and what could be improved. This information will help us to develop local dementia services and support and to help review our current dementia strategy

You can find out more and put forward your views by:

Completing the survey on-line using this link

Requesting a paper survey using the contact details provided.

The closing date for all responses is Friday 22nd March 2019.

If you would like to find out more about the outcomes of this engagement, and the future developments of Warwickshire’s Dementia Strategy and services for people with dementia, please contact

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